tag:blogger.com,1999:blog-5620041777082716757.post8702501875122620808..comments2024-01-06T01:28:20.399-08:00Comments on Abdullah Waheed's Blog: Status of Thalassemia in the MaldivesAbdullah Waheed's Bloghttp://www.blogger.com/profile/09398102386243434950noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-5620041777082716757.post-57331682106502545812011-01-15T23:08:47.013-08:002011-01-15T23:08:47.013-08:00Wow.... Before I thought Maldives had kind,brave e...Wow.... Before I thought Maldives had kind,brave educated people..... But after Reading these Comments I must Say Maldivians just went to school while they already had they mouth to spread rumors and to blame others and politicians... Why Should we legal Abortions,TO say If we had this Thalassemia HBA2 test Done(IF). Why to Blame Government.... After MDP Government falls all will Say that Was in Mohamed Nasheed era... Blame Our Self First..Its Our Country After All... IS THERE ANY ONE HERE DONATE ANYTHING TO THALASSEMIA CARRIERS...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-32385587974143933982009-06-24T21:42:25.828-07:002009-06-24T21:42:25.828-07:00The idiot who wrote this can't even spell CARR...The idiot who wrote this can't even spell CARRIER! <br /><br />For his sake,<br /><br />CARRIER<br />Genetics. <br />a. an individual possessing an unexpressed, recessive trait. <br />b. the bearer of a defective gene. <br /><br />CAREER<br />an occupation or profession, esp. one requiring special training, followed as one's lifework. Eg; He sought a career as a lawyer. <br /><br /><br />It is not an easy thing trying to find an eperts in a subject. As far as I am concerned, someone who do not possess the basic knowledge (proof to our eyes: inability to spell the basic term "carrier") of genetics or the disease in particular, is far from being an expert. Watch out for any wrong information that may be passed by such "experts"!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-15549133785553555592009-02-19T22:09:00.000-08:002009-02-19T22:09:00.000-08:00Oh my God!! Please stop this blame game. Let me cl...Oh my God!! Please stop this blame game. Let me clarify something. The blame for having this high percentage of Thalassemics in Maldives can not be attributed to any organization. It is an established Principle of Genetics called Hardy-Weinberg Principle, which says that in an inbreeding population the frequency of any gene will remain constant. So let’s talk logically. The only way of reducing this gene’s frequency is to go for selective breeding. That means identify the population as carriers and non-carriers (which have been done to a great extent already) and prevent marriages between normal and carrier. Allow only carriers to marry each other and go for in vitro fertilization (IVF) to implanted selected embryo's which are free from this gene only. This will not involve abortion so no haraam act. Mullahs will be happy and so will be the parents. Invest money in this. This could one day lead us to a Thalassemia free MaldivesUnknownhttps://www.blogger.com/profile/12304494867424065689noreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-72606928032371282222009-02-19T22:06:00.000-08:002009-02-19T22:06:00.000-08:00Oh my God!! Please stop this blame game. Let me cl...Oh my God!! Please stop this blame game. Let me clarify something. The blame for having this high percentage of Thalassemics in Maldives can not be attributed to any organization. It is an established Principle of Genetics called Hardy-Weinberg Principle, which says that in an inbreeding population the frequency of any gene will remain constant. So let’s talk logically. The only way of reducing this gene’s frequency is to go for selective breeding. That means identify the population as carriers and non-carriers (which have been done to a great extent already) and prevent marriages between normal and carrier. Allow only carriers to marry each other and go for in vitro fertilization (IVF) to implanted selected embryo's which are free from this gene only. This will not involve abortion so no haraam act. Mullahs will be happy and so will be the parents. Invest money in this. This could one day lead us to a Thalassemia free MaldivesUnknownhttps://www.blogger.com/profile/12304494867424065689noreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-92159043767096527352009-02-15T23:02:00.000-08:002009-02-15T23:02:00.000-08:00I disagree, with some people who says errors in th...I disagree, with some people who says errors in the diagnosis from SHE or some where else, in any experiment the possibility of errors are there.<BR/><BR/>The notion that SHE is responsible for thalassemia in Maldives is not the right information. SHE is an NGO they are doing what they have chosen to be right for health awareness including thalassemia. In my view they are doing commendable job.<BR/><BR/>As Dr.Faisal has expressed in his data, if the current system does not work to reduce registered transfusion dependent patients. In my opinion MOH and NTC has to take the responsibility and they need to find a solution for this.<BR/><BR/>According to published data 18.1% carries heterozygous for beta thalassemia genes in Maldives. If this is a public health issue ,I think its a responsibility of health policy makers in the government.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-35066871786700836622009-02-15T20:55:00.000-08:002009-02-15T20:55:00.000-08:00why should SHE work under MOH? SHE is a non govern...why should SHE work under MOH? SHE is a non government organisation registerd under Home Affairs. I guess in that case all NGO's work on health issues should be under MOH. and Journey & SWAD should be under NNCB since they are working on drugs.Moreover for your information if you really look SHE is not a property of the Govt. Its an independent NGO providing free services to the community. people need to look into works of others before commenting. SHE works towards awareness and people know Thalassaemia because of SHE. why did you not look at what SHE has ever done in treatment by providing Desferol pumps, Filters and BMT.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-7628494751437309852009-02-15T11:50:00.000-08:002009-02-15T11:50:00.000-08:00I dont think, we need to blame SHE for any of thes...I dont think, we need to blame SHE for any of these thing, SHE is an NGO, they chose create thalassemia awareness in Maldives. They have got substantial amount of data.<BR/><BR/>But where is MOH and DPH who has to be responsible on public health issues. NTC is technically the regulatory body to look after thalassemics in the country, other than just giving regular transfusion , what else they have done past 15 years.<BR/><BR/>In my opinion, thalassemia issue in Maldives is not matter of how its diagnosed or treated, its matter of how the message is passed and there is lack of communication gap to pass this in to society. Currently is been like a fear among community, where 20% of the country carries this genetic genes. First thing we need to do is abolish this card system, red card and white card to label people in their genetics. Of course we can screen people , but we can issue reports like any other laboratory investigation, with privacy and respect.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-15717622346628205052009-02-15T07:47:00.001-08:002009-02-15T07:47:00.001-08:00i believe SHE is no longer capable of doing the jo...i believe SHE is no longer capable of doing the job..They failed to decrease the number of major cases over the past years. Government should not depend on them as a part of this programme. I call on MOH to promote awareness at a large scale using all the medias available.<BR/>I worked at NTC until late 2007, but as Mr.Mustafa has mentioned there are no authorities for the admin from top to bottom to improve the case.<BR/>If you have analyzed the no. of major cases due to wrong diagnostic report from SHE you would have come across many cases. This is due to the mishandling and unprofessional staff who stands at the very important point of the organisation. The report issuing is the main concern here..The technique is not well and so fragile that anytime you may receive a wrong result..<BR/>SHE has worked more prominently for their beneficiaries rather than the community. The funds they get from MOH and other International corporations can be utilised to improve the community more efficiently rather than just spending a double work and money.<BR/>NTC and SHE both are doing the same work for the same community. SHE must work under MOH not under the former first lady. The out come will be much brighter and better ..hussainfaizhttps://www.blogger.com/profile/07740378650771865608noreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-88432479775783407532009-02-15T04:24:00.000-08:002009-02-15T04:24:00.000-08:00Thalassemia is a disease invented by Gayoom's wife...Thalassemia is a disease invented by Gayoom's wife.because she was bored at home. Now that SHE is no longer so powerful the disease will find a natural death.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-91901781604614698362009-02-14T22:50:00.000-08:002009-02-14T22:50:00.000-08:00The former government lacked any vision and proper...The former government lacked any vision and proper long-term planning to tackle any important issues facing the country. This is just one of the many results of neglect our country has inherited from the previous government.Khilath Rasheed - journalist and blogger from Maldiveshttps://www.blogger.com/profile/13514858107197926545noreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-83369451058434349892009-02-14T10:12:00.000-08:002009-02-14T10:12:00.000-08:00Test and abort should be the policy to eradicate t...Test and abort should be the policy to eradicate thalssemia. This policy has worked in many countries.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-3178839297704704272009-02-14T04:05:00.000-08:002009-02-14T04:05:00.000-08:00if we really need a change to thalasemics in the c...if we really need a change to thalasemics in the country, we need to change the people involved in the process. there are people like Malaria Gafoor in the circle who become master of thalasemia by chlorinating drinking water wells years back when he was young. we need people like him to be out and replace with educated people in the field. Guys like gafoor they are day light silent robbers born in the Maumoon era. This is 21st century, we need people of high caliber, not silent robbers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-33932517229290429682009-02-13T16:31:00.000-08:002009-02-13T16:31:00.000-08:00We dont need to screen for thalassemia, human invo...We dont need to screen for thalassemia, human involvment in any biodiversity there will be consequences. Thats what is happening thalassemia in Maldives. Naturally for a reason may be thalassemia existed in Maldives population, scientific evidence suggests thalassemics has natural immunity against malaria. Maldives been in a region where malaria is highly prevalent, it may be a good thing to survive to have thalassemia.<BR/><BR/>The current situation of thalassemia is a political issue, even last campaign some people said if they vote for their party, they can get help to go for a bone marrow transplantation.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-14289040415580640622009-02-13T11:42:00.000-08:002009-02-13T11:42:00.000-08:00first clot.then flesh .bones etc. life is put seve...first clot.then flesh .bones etc. life is put several weeks later. you abort before the unborn becomes human with life.We should be more believing in forward thinking sheks like our own Rasheed etc . Not this Qaradawi chap.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-17783509304841553542009-02-13T03:16:00.000-08:002009-02-13T03:16:00.000-08:00OK. may be SHE took up the wrong method. But they...OK. may be SHE took up the wrong method. But they worked in good intention. So give them some credit.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-23922841540652171222009-02-13T03:14:00.000-08:002009-02-13T03:14:00.000-08:00with proper managment most thalassemia kids aught ...with proper managment most thalassemia kids aught to grow up into adulthood. So in the Maldives when so much public money is spent for this one disease, why are so many dying?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-33170475554143048732009-02-13T02:27:00.000-08:002009-02-13T02:27:00.000-08:00Children should be tested to determine if they are...Children should be tested to determine if they are thal carriers. If they are it should be a legal requirement to abort the baby. When Islamic affairs was under Sheikh Rasheed and Maumoon it was declared abortion before a certain period was not un-Islamic and not murder.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-60592414962972664042009-02-12T23:43:00.000-08:002009-02-12T23:43:00.000-08:00Effective preventive approaches to genetic disease...Effective preventive approaches to genetic diseases have been demonstrated in countries where an inherited condition is common and carriers of abnormal genes can be reliably identified. For example, in Cyprus, Greece and Italy, screening for thalassaemia is standard practice and national audit data are available; most at-risk couples are identified in time to be offered early diagnosis in the first pregnancy, of whom the majority use this service and produce healthy offspring. Screening programmes need to be supported by public education and regulatory structures to empower individuals to make informed decisions and to ensure that people are protected against discrimination as a result of their test results." paragraph from WHO report"Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-20884105930964463282009-02-12T21:54:00.000-08:002009-02-12T21:54:00.000-08:00I saw this trend in 2002, which thalassemia major ...I saw this trend in 2002, which thalassemia major cases were declining, while I was diagnosing thalassemia in this center, I wrote a small article on thalassemia week supplement in Baqai Medical University, where i wrote thalassemia in Maldives is a success story. <BR/><BR/>But before I left in 2004 I have noticed this is not working in Maldives, I personally tried to change the protocols, but I didnt get the support.<BR/><BR/>Lot of obstacles because of bureaucracy and red tape, every small thing has to go to MOH and so many committees and meetings, nothing works.<BR/><BR/>As Faisal said we need to revise this and need urgent action rather than talk.Musthohttps://www.blogger.com/profile/13198836727478195716noreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-58389354556610697462009-02-12T21:32:00.000-08:002009-02-12T21:32:00.000-08:00From the figures you provide more than $3 million ...From the figures you provide more than $3 million is spent each year on treating thalassemia. We have to do something to decrease thalassemia inidence urgently. if abortion works it needs to be started.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620041777082716757.post-20549808367106456262009-02-12T11:51:00.000-08:002009-02-12T11:51:00.000-08:00Some people do things because they have something ...Some people do things because they have something to do; others do things because they have to do something. It was the latter case with Society for Health Education, when it had to choose something to do. It was unfortunate for Maldives that it chose thalassemia screening. The increasing incidence of thalassemia we see today is the long term effect of that misguided strategy.Abdullah Waheed's Bloghttps://www.blogger.com/profile/09398102386243434950noreply@blogger.com